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RESOURCES

The Individuals with Disabilities Education Act (IDEA) guarantees every U.S. citizen the right to a free and appropriate public education (FAPE).  This law was originally passed in 1975 as the Education for All Handicapped Children Act, and it has been reauthorized several times, most recently in 2004.

Important facts about the IDEA:

  • Free and Appropriate Public Education (FAPE): IDEA mandates that public schools provide FAPE to eligible children with disabilities, which means they must provide educational services tailored to meet their individual needs at no cost to the family.

  • Individualized Education Program (IEP): Schools are required to develop an IEP for each eligible child, outlining specific educational goals and the services to be provided.

  • Least Restrictive Environment (LRE): IDEA emphasizes that children with disabilities should be educated with their non-disabled peers to the maximum extent appropriate, ensuring they are not unnecessarily segregated.

 

In addition to IDEA, the Section 504 of the Rehabilitation Act of 1973 and the Americans with Disabilities Act (ADA) also contribute to the rights of individuals with disabilities in educational settings, ensuring that they receive appropriate accommodations and support.

At the same time, there are many factors that can make it difficult for children to receive an IEP in U.S. public schools today.  These obstacles include bureaucratic delays, systemic issues and a simple lack of awareness or understanding about special education laws.

In fact, before my challenges presented themselves, my parents had never heard of an IEP and only vaguely knew about the IDEA.

Here are some of the main obstacles:

1. Identification and Evaluation Delays

  • Inadequate Early Identification: Schools may delay the identification of learning disabilities or other conditions due to a lack of trained staff or proper screening tools. Early intervention is critical, but many students are not identified until they have experienced years of academic struggles.

  • Waiting for Failure: Some schools may adopt a "wait-to-fail" approach, waiting until a student is significantly behind before initiating the evaluation process, rather than proactively addressing emerging issues.

  • Overburdened School Psychologists: There are often too few school psychologists or special education staff, leading to long wait times for evaluations, which are necessary to determine eligibility for an IEP.

 

2. Lack of Parental Awareness and Advocacy

  • Limited Parent Knowledge: Many parents are not fully aware of their child's rights under the Individuals with Disabilities Education Act (IDEA), which guarantees the right to an IEP for students who qualify. Without knowing the process or the options available, parents may not request evaluations or advocate for their child.

  • Language and Cultural Barriers: Non-English-speaking families or families from culturally diverse backgrounds may face difficulties understanding the process, advocating for their child, or accessing necessary resources to help navigate the IEP system.

 

3. Misclassification or Over-Reliance on RTI

  • Response to Intervention (RTI): RTI is a method that schools use to provide support for students who are struggling before referring them for an IEP. While RTI can be effective, it can also delay the special education evaluation process if it is overused or implemented poorly.

  • Misclassification: Students may be misclassified, either receiving an incorrect diagnosis (e.g., being placed in the wrong special education category) or being labeled with behavioral issues rather than learning disabilities, which may prevent them from accessing appropriate support.

 

4. Bureaucratic Hurdles

  • Complicated Paperwork and Processes: Navigating the special education system can be complex and time-consuming, involving a significant amount of paperwork, meetings, and legal processes that may overwhelm both parents and school staff.

  • Legal and Funding Concerns: Some school districts may be hesitant to initiate the IEP process due to concerns about legal liability or the cost of providing the necessary services. Although IDEA mandates services, the federal government only covers a portion of the associated costs, putting financial strain on local districts.

 

5. Inconsistent Application of IDEA

  • Varying Standards Across States/Districts: Although IDEA is a federal law, the way it is implemented can vary greatly between states and even individual school districts. This can lead to inconsistencies in the eligibility process, services provided, and how strictly timelines and guidelines are followed.

  • Disparities in Access: Schools in under-resourced or rural areas may not have the same capacity to provide specialized services as wealthier districts, resulting in inequitable access to IEPs and related services.

 

6. Disagreements Between Parents and Schools

  • Disputes Over Eligibility: Schools and parents may disagree about whether a child qualifies for an IEP. Schools may argue that a child's difficulties do not meet the criteria for special education services, while parents may feel their child's needs are not being adequately met.  

  • IEP Implementation Disputes: Even after a child qualifies for an IEP, disagreements can arise over the services provided, the goals set in the plan, or the school's ability to meet those goals. These disputes can lead to lengthy and stressful legal battles, which may delay the implementation of the IEP.

 

7. Resource Constraints

  • Insufficient Funding: Special education services can be costly, and many schools face budget constraints. This can lead to inadequate staffing, lack of resources, or an unwillingness to provide all necessary services outlined in an IEP.

  • Staffing Shortages: Special education teachers, speech therapists, occupational therapists, and other service providers may be in short supply. This can result in delays in the delivery of services, overcrowded classrooms, or insufficient attention to students with IEPs.

 

8. Cultural and Racial Disparities

  • Disproportionate Identification: Minority students are disproportionately identified as having disabilities, particularly in the categories of emotional disturbance and intellectual disability. This can lead to inappropriate placement in special education, while others, especially minority students with high-functioning disabilities, may be under-identified or misidentified.

  • Bias in Evaluations: Implicit bias on the part of educators or evaluators can lead to inequitable decisions regarding who receives an IEP, which services are provided, or the level of support offered to different students.

 

9. Post-COVID-19 Challenges

  • Learning Loss and Overwhelmed Systems: The COVID-19 pandemic resulted in significant learning loss for many students, particularly those with disabilities. School systems are now overwhelmed trying to catch students up, which can delay IEP evaluations or services.

  • Hybrid and Remote Learning: Some students with disabilities struggled to receive the accommodations they needed during remote learning. The shift back to in-person instruction may have further complicated the reassessment or implementation of their IEPs.

Summary

While IEPs are a foundational building block for ensuring that students with learning differences receive the support they need, there are many obstacles that can delay or prevent children from obtaining these plans. The solution often lies in better training for educators, greater parental awareness, increased funding for special education, and stronger oversight of the process to ensure equitable access to services for all students.

HOW DO I FIND SUCH A SPECIALIST?

  • Start by searching “child specialist near me”

  • Ask a friend, ask your doctor, and/or ask your school (most schools will have a someone appointed who has knowledge in this area)

Specialists saw and heard me in a way that my parents couldn't, because my parents didn't have the training or experience.  My interventions (behavioral therapy, occupational therapy, and speech/language therapy) started when I was about 5 years old, and tapered off over the years as I learned more about how to navigate my challenges with different strategies.

Finding Providers who Specialize in Neurodevelopment and Learning Differences

HOW DO I FIND A SCHOOL THAT OFFERS SPECIAL EDUCATION?

  • Search for “special education schools near me”. You can do so on this website, for instance.

My school, Eagle Hill in Greenwich, specialized in children with learning disabilities. Eagle Hill helped me remedy the acting out pre-Math class and helped me learn how to learn with different strategies (i.e. “scooping syllables”' which is where you can sound out a word by breaking it apart... this all helped with my dyslexia). After three years, Eagle Hill decided I was ready to take on a K-8 public school.

Finding the right Special Education School

RESOURCE

  • There are a plethora of resources and ideas embedded in the stories section.

It is important to find an outlet that your child can focus on that is separate from academics (whether it is equine therapy or not). I've always been very goal-oriented, so equine therapy helped me work towards my goals and achieve them. However, there are so many options including other athletic activities or even  volunteering at an animal sanctuary.

Finding an outlet for your child to focus on

RESOURCE

  • Read the relevant story here.

This can happen as young as 1st or 2nd grade (I got my service dog when I was 8 years old). 

Getting a service animal

RESOURCES

  • Getting your child tested for an “IEP” (Individualized Education Program).

  • Empowering your child to be able to advocate for themselves in school (raising their hand, asking the teacher to repeat something or explain it slower).

The accommodations were identified through a process with the school board, which started when my parents decided I needed special educational intervention that a mainstream school could not provide.

The steps in the process were:

  1. Hiring an Education Lawyer;  other families hire an advocate.

  2. Our lawyer petitioned our school district for financial assistance with the Eagle Hill tuition (which at the time cost more than a year at Harvard University). The law on which our petition was based says that every child is entitled to a free and appropriate education. My parents had to work with a lawyer to prove that the public school could not provide an education that was appropriate for my unique needs.

  3. The first step was a meeting called the PPT. The Planning and Placement Team (PPT) is the interdisciplinary team of parents and educators that make decisions regarding your child's special education. The team may also include, at the discretion of the parent or the school district, other individuals who have knowledge or special expertise about your child.)


In the PPT, everyone agreed upon the diagnostic tests that had to be administered by school district specialists to evaluate the nature of my needs.

Starting with the year I entered Eagle Hill, I had to be tested annually by a clinical psychologist (for the ASD), a speech and language pathologist (for language-based processing differences) and an educational specialist (for the dyslexia/learning challenges).  

The outcomes of all these tests were then presented to us and our lawyer in the form of a recommendation for the interventions I would need at school. This was called an IEP, an Individualized Education Plan. My IEP included the accommodation of "time and a half" on tests, that we've retained.

Accommodations

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